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  1. #1

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    Question I just found out today that.... [DL with Osgood-Schlatter disease]

    my son has Osgood-Schlatter disease... . It has been so painful for him to walk the past week and the dr. said this can last months and months. They are putting him in physical therapy, and giving him some meds to help... So my question is... we are going to DL next month and if he is not any better... ( meaning the pain when he walks) I think I might need to use a wheelchair. Do they rent these? Do you have to leave them out like u do strollers while ur in line? I am clueless to this issue, but I dont want him to be in pain while we are there. I know how hard it is to let alone walk around DL much less with a wheelchair.. any suggestions? Or even any advice would be wonderful .. thanks!
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    Re: I just found out today that....

    Quote Originally Posted by pyrateswife View Post
    my son has Osgood-Schlatter disease... . It has been so painful for him to walk the past week and the dr. said this can last months and months. They are putting him in physical therapy, and giving him some meds to help... So my question is... we are going to DL next month and if he is not any better... ( meaning the pain when he walks) I think I might need to use a wheelchair. Do they rent these? Do you have to leave them out like u do strollers while ur in line? I am clueless to this issue, but I dont want him to be in pain while we are there. I know how hard it is to let alone walk around DL much less with a wheelchair.. any suggestions? Or even any advice would be wonderful .. thanks!
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    Yes they rent wheelchairs and ECVs. There are several private companies that both that will drop off to your hotel which would allow you to use it for the entire time. If you are staying at a hotel that has bell service the bell service will usually allow you to leave it with them at the end of your stay so thatyou do not have to wait for the company to come pick it up. If you make arrangements early most companies will make it as convenient as possible for you.
    Last edited by mousechild; 12-04-2007 at 11:58 AM.
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  3. #3

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    Re: I just found out today that....

    You might want to also look at this page. It would probably be helpful.

    http://disneyland.disney.go.com/disn...tyGSDetailPage
    One day your life will flash before your eyes. Make sure it's worth watching.


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    Of course I am worried about your mental health. I want happiness for all. Like we can all be like the Smurfs. But without Gargomel. He was mean.

  4. #4

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    Re: I just found out today that....

    Sorry to hear that PW. Wheelchairs are certainly available. Hopefully a great day at Disneyland will take his mind off the pain.

    Chad

  5. #5

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    Re: I just found out today that....

    Quote Originally Posted by pyrateswife View Post
    my son has Osgood-Schlatter disease... . It has been so painful for him to walk the past week and the dr. said this can last months and months. They are putting him in physical therapy, and giving him some meds to help... So my question is... we are going to DL next month and if he is not any better... ( meaning the pain when he walks) I think I might need to use a wheelchair. Do they rent these? Do you have to leave them out like u do strollers while ur in line? I am clueless to this issue, but I dont want him to be in pain while we are there. I know how hard it is to let alone walk around DL much less with a wheelchair.. any suggestions? Or even any advice would be wonderful .. thanks!
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    Welcome to the OS club! My son has OS (diagnosed when he was 14.) He takes meds to help with the pain, carry them with you. Physical therapy helps a little but not a lot. Age helps the most. My son's most painful times were from 14-17. He is now 19 and is finally outgrowing it. You can park the wheelchair and walk thru the lines, it is often shorter that way, or use the handicap entrance, which is often longer than standby but at least he can sit and wait. Have him do his stretches though while there, they really do help. Watch out for people who think because he is a teen, he is goofing off in the chair. If he is like mine, he will goof around, but that doesn't mean the pain isn't there or isnt real.

    One thing we did was he kept up the exercise and only used the chair when his knees really hurt. (He pushed my nieces around or used it as a place to sit.) Not sure what meds they put your son on, we were mainly on Ibprofen 800 in the day time. If you forget, you can get ibprofen 200 at the First Aid station, but it doesn't help as much. My son also found heating pads to be VERY helpful. We bought the kind you could heat in a microwave, then wrap around his knees with velcro. He would go to bed at night with those. Doctors often recommend ice, but my son felt heat worked better in his case. Also, we kept one with us and could heat it in the first aid center. His was a bilateral case (meaning both knees were affected.)

    My son played football in high school and acheived his black belt during this time. The doc initially said "No activity", but upon questioning him, we found no permanent damage would be done by activity, and the only issue was pain. So, instead of limiting his activity, we controlled his pain. He was a lineman on the football team. He competed throughout the teen years in sparring (advanced thru blackbelt.) Neither are "gentle" sports. OS can be controlled. And it is usually found in active kids.
    If you see a cute yellow lab puppy with a yellow cape, WAVE! It might be us! (Or it may be someone else that lurks here!) Thank you for asking before you pet! Next trip, Dec 22-Jan 3rd.

  6. #6

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    Re: I just found out today that....

    Sorry to hear. I have had it since I was a young teen, and still have it. (It is more rare in girls, but we do get it) Most grow out of it, but some don't! Yes, he can get a wheelchair. Also, you can go to First Aide in both parks to get icepacks.

  7. #7

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    Re: I just found out today that....

    Quote Originally Posted by Malcon10t View Post
    Welcome to the OS club! My son has OS (diagnosed when he was 14.) He takes meds to help with the pain, carry them with you. Physical therapy helps a little but not a lot. Age helps the most. My son's most painful times were from 14-17. He is now 19 and is finally outgrowing it. You can park the wheelchair and walk thru the lines, it is often shorter that way, or use the handicap entrance, which is often longer than standby but at least he can sit and wait. Have him do his stretches though while there, they really do help. Watch out for people who think because he is a teen, he is goofing off in the chair. If he is like mine, he will goof around, but that doesn't mean the pain isn't there or isnt real.

    One thing we did was he kept up the exercise and only used the chair when his knees really hurt. (He pushed my nieces around or used it as a place to sit.) Not sure what meds they put your son on, we were mainly on Ibprofen 800 in the day time. If you forget, you can get ibprofen 200 at the First Aid station, but it doesn't help as much. My son also found heating pads to be VERY helpful. We bought the kind you could heat in a microwave, then wrap around his knees with velcro. He would go to bed at night with those. Doctors often recommend ice, but my son felt heat worked better in his case. Also, we kept one with us and could heat it in the first aid center. His was a bilateral case (meaning both knees were affected.)

    My son played football in high school and acheived his black belt during this time. The doc initially said "No activity", but upon questioning him, we found no permanent damage would be done by activity, and the only issue was pain. So, instead of limiting his activity, we controlled his pain. He was a lineman on the football team. He competed throughout the teen years in sparring (advanced thru blackbelt.) Neither are "gentle" sports. OS can be controlled. And it is usually found in active kids.
    It is nice to hear from someone else who has gone through this.. I never knew about this untill today! He has been limping around the house for about a week and yesterday he was in tears so we finaly went to get it checked out.. ( at first I thought he was just sore from playing around) Now I feel bad I didnt address it earlier.. The Dr. gave him codine and tylenol which I dont like the fact of him taking that while in school.. he will be 11 next week, so I just give him Ibuprofin to get him through school.. I just had no idea u could be in so much pain... they are also haveing me tape his knee.... to limit use for a while... I guess we will see how that goes.. I just hope it dont ruin his time at Disneyland... He dont even know we are going yet! I like the idea of a heated wrap.. I have been soaking him in hot bath with epsom salt.. ( sorry if I spelled that wrong).. I just wish he could get comfortable...

  8. #8

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    Re: I just found out today that....

    Quote Originally Posted by pyrateswife View Post
    It is nice to hear from someone else who has gone through this.. I never knew about this untill today! He has been limping around the house for about a week and yesterday he was in tears so we finaly went to get it checked out.. ( at first I thought he was just sore from playing around) Now I feel bad I didnt address it earlier.. The Dr. gave him codine and tylenol which I dont like the fact of him taking that while in school.. he will be 11 next week, so I just give him Ibuprofin to get him through school.. I just had no idea u could be in so much pain... they are also haveing me tape his knee.... to limit use for a while... I guess we will see how that goes.. I just hope it dont ruin his time at Disneyland... He dont even know we are going yet! I like the idea of a heated wrap.. I have been soaking him in hot bath with epsom salt.. ( sorry if I spelled that wrong).. I just wish he could get comfortable...
    I am sure that Malcon can address your sons specific issues far better than I can, but in general if you plan on taking your time and limit how hard you push your group I think you can enjoy your time at the park. You probably don't want to be at the front of the morning rope drop or try to close the park, nut there are plenty of places to sit and enjoy the scenery. Disney has probably seen it all and no matter how much we complain and kvetch here overall the Cast Members do an excellent job of helping.
    Quote Originally Posted by SummerInFL View Post
    Jesus, even I wouldn't eat that.

    Quote Originally Posted by Wanda Woman View Post
    Turtle, the dorks are going to take upskirt robot pics.

  9. #9

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    Re: I just found out today that....

    Quote Originally Posted by pyrateswife View Post
    It is nice to hear from someone else who has gone through this.. I never knew about this untill today! He has been limping around the house for about a week and yesterday he was in tears so we finaly went to get it checked out.. ( at first I thought he was just sore from playing around) Now I feel bad I didnt address it earlier.. The Dr. gave him codine and tylenol which I dont like the fact of him taking that while in school.. he will be 11 next week, so I just give him Ibuprofin to get him through school.. I just had no idea u could be in so much pain... they are also haveing me tape his knee.... to limit use for a while... I guess we will see how that goes.. I just hope it dont ruin his time at Disneyland... He dont even know we are going yet! I like the idea of a heated wrap.. I have been soaking him in hot bath with epsom salt.. ( sorry if I spelled that wrong).. I just wish he could get comfortable...
    It is very very painful. He may be good by the trip. For me, it comes and goes. Once I didn't overuse my legs, I would be good for a while, and then it would hit again. Just think about it as growing pains, but in your knees. It hurts really bad. Hope he feels better soon!

  10. #10

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    Re: I just found out today that....

    awwwwwwww thanks so much for letting me know a little about this...

  11. #11

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    Re: I just found out today that....

    I sorry to hear about the diagnosis. I'd tell you about the wheelchairs, but it seems people who are way more qualified then me have been helping you. I wish you and your family much luck with this.
    "If I had a world of my own, everything would be nonsense. Nothing would be what it is because everything would be what it isn't. And contrary-wise; what it is it wouldn't be, and what it wouldn't be, it would. You see? " - Alice

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  12. #12

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    Re: I just found out today that....

    Quote Originally Posted by pyrateswife View Post
    ....
    So my question is... we are going to DL next month and if he is not any better... ( meaning the pain when he walks) I think I might need to use a wheelchair.
    1. Do they rent these?
    2. Do you have to leave them out like u do strollers while ur in line?
    3. .. any suggestions?
    1. Yes. You can bring your own, though. Might be helpful for plane ride and such.
    2. No. Most attractions will have wheelchair access entrances (usually through the exit, but ask a CM and he/she should know how to answer such questions), and shows will have special viewing areas. No, you won't get on the ride immediately, since that wouldn't be fair. But you will likely get on sooner than someone in line.
    3. Enjoy your visit! It's freakin' Disneyland! Oh, and make sure you or others can push a wheelchair for hours at a time. Seems easy, until you actually have to do it.
    "Here You Leave the World of California Today and Enter the World of, um, er, California Today."

  13. #13

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    Re: I just found out today that....

    Quote Originally Posted by pyrateswife View Post
    It is nice to hear from someone else who has gone through this.. I never knew about this untill today! He has been limping around the house for about a week and yesterday he was in tears so we finaly went to get it checked out.. ( at first I thought he was just sore from playing around) Now I feel bad I didnt address it earlier..
    I was similar to you. My son first complained about his knees when he was about 12 (off and on) but I associated it with his being overly active. At about 13, he could no longer kneel without pain, and we noticed the "knots". Our GP sent him to the specialist, as he thought he had broken his leg and it had healed improperly. The specialist diagnosed OS and explained it to us. It was scary, as we have also discussed surgery in the future (removing the calcium growth where the tendon attaches to the bone.) He was given ibprofen for daytime. He also had vicodin for severe days and at night (nights were always worse as there were no distractions from the pain.) He had/has a severe case, and we did find heat pads helped tremendously.

    BTW - While my son participated in all the other areas of sports, the one area we eliminated was running.. He was allowed to "run" for what his position called for in football, but otherwise, he walked. His doctor wrote a note to keep him from PE, but we never used it. We did discuss it with the PE teacher and he preferred we just managed it without pulling him from PE altogether.

    ETA - We do 3-4 trips a year, usually for 4-12 days. Just be prepared. And the knee brace (looks more like a loop around the knee than a traditional brace) really does help.
    Last edited by Malcon10t; 12-04-2007 at 08:51 PM.
    If you see a cute yellow lab puppy with a yellow cape, WAVE! It might be us! (Or it may be someone else that lurks here!) Thank you for asking before you pet! Next trip, Dec 22-Jan 3rd.

  14. #14

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    Re: I just found out today that.... [DL with Osgood-Schlatter disease]

    My son has a congenital heart defect, and before his most recent surgery two years agp, we took the family on a trip to DL. He was unable to walk a lot, or stand a long time without becoming extremely tired. We were staying at the DLH. We rented a wheelchair for him from DL first, but on a trip on the monorail to get to the hotel, they told us we could rent a wheelchair from the DLH, and could keep it the whole week instead of renting it daily. That worked great.

    I must also say that the cast members were all fantastic, and it was probably one of the best trips we have ever taken to DL. Hope everything works out well for you.
    I'd rather be at Disneyland!

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