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  1. #1

    • MC State Comptroller
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    Sad I'm going through a hard time right now

    I really donít know where to start. I will try not to make this an epic post, since I myself donít have the attention span to read them, but I guess I just need to vent and Mice Chat is my second home and family, and just like a family I may not always agree with things or get along with everybody, but I always feel welcomed.

    Iíve wrestled with sharing this with you all, or at least those that are interested, for some time. I am a private person and donít want to be pitied. I know that Mice Chat is great place for support and advice and I guess that it why I have decided to let you all in on whatís been going on with me the past 5 months.

    Back in September I got what I thought was food poisoning. I was sick for a day, but afterwards felt fine except that when I stood up I would get light headed and walking around would cause me to be short of breath. After a week of not getting any better I saw my doctor and she had some blood work done and within two hours I was in the hospital getting a blood transfusion as my blood count was extremely low. While in the hospital they found out I had bleeding in my esophagus. At first they thought it was due to my ulcers, but after a few more test they found cirrhosis of the liver. Not being much of a drinker and no other signs of alcohol caused liver disease, the doctors were puzzled by what was causing it. After some more tests they thought I had Wilsons Disease, which is where the liver cannot process the excess copper in my system, but after a month of inconclusive test results that doesnít seem to be the case. Since they cannot get a conclusive result the doctors have sent me down to the Mayo Clinic in Phoenix to determine what is causing the cirrhosis. The good news is that according to the biopsy and other tests, it does not look like cancer and there does not seem to be an immediate need for a transplant. The flip side is that I will eventually need a liver transplant. The worse thing is that the medications they have me on have made me more fatigued than ever along with bloating in the abs and ankles. I had been planning on attending the anniversary meet but with how bad I have been feeling it was impossible.

    On top of all this I am still unemployed. When all this first started I applied for AHCCCS (state provided med insurance) and was denied on the basis that I made too much on unemployment to qualify (by $43.00), but I was put on another plan that would cover me on a ďspend down basisĒ. So I am covered, but with a deductible. Today I find out that they are discontinuing my coverage at the end of the month and that I will have to reapply when my medical bills exceed the deductible. The approval process takes up to 45 days. So now, in the middle of all this, I am going to have to redo everything I did 5 months ago!

    Finally, on Sunday I found out that my uncle in Italy had died. Although I wasnít really close to him since I only saw him twice when I was young and once about 9 years ago, it still was hard and on top of everything else made me wonder when everything was going to stop.

    Everything seems to be piling on and it makes one wonder when itís all going to stop and I will be able to catch my breath. What bothers me the most is that I am usually the strong one and others depend on me, now I am depending on others to help me with stuff and itís a shock to the system for me. I am fiercely independent and now that I have to have help it is frustrating. Couple that with the fact that everything just seems to be going the wrong way for me and I am just feeling so far down the rabbit hole. I donít know where things can go from here, I hope up, but right now I am not so sure.

    Thanks for reading this long post. Venting has made me feel a little better. If you can spare a thought or prayer for my family and me I much appreciate it. I will keep you informed of any changes and updates.
    -Kevin-
    "Here you leave Today and enter the world of Yesterday, Tomorrow and Bankruptcy!"


    Maybe for once, someone will call me "Sir" without saying, "You're making a scene!"


    Arizona Cardinals 2008 NFC Champions

  2. #2

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    • Skeevy Ray Vaughan
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    Re: I'm going through a hard time right now

    I'm so sorry Kevin. There's not a whole lot I can say but keep checking into the government insurance available to you. I'm not sure if you are able to lower the amount you get to make sure you are eligible for MediCal/Medcaid but it's worth looking into. Keep looking forward to the day you feel better and are back on your feet.

    Chad

  3. #3

    • Only the Lonely
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    Re: I'm going through a hard time right now

    I wish you all the best..and like aashee said try looking into medicare..if you need information..feel free to PM I work at a dialysis clinic and I have two super awesome social workers who can give you information in regards to insurance and how Medicare works..

    I send you my prayers to you and your family at this time.and remember don't give up have faith and take things day by day...God Bless..
    "Your dead if you aim only for kids. Adults are only kids grown up, anyway." Walt Disney





    Posts: 7,777 4x the Luck




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  4. #4

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      MiceChat Senior Moderator
    • Jester of Randomness
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    Re: I'm going through a hard time right now

    I can't add much more other than I'll send some positive Karma your way and lots of

    Sometimes it seems like everything in life is conspiring to bring us down all at once. The important thing is to hold on and keep moving forward. It may take time but one day you'll be on the other side of this looking back and things will be better. You just have to hold onto moving on.




    Help me get more security in Pingvinivlle! Click here!


    Quote Originally Posted by AGhostFromThePast
    all you need to know about the mommy stick is.. out of all the bad things that could happen to you... it's right between wetting yourself and death.

  5. #5

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    • At one w/ our Disneyness
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    Re: I'm going through a hard time right now

    Sending you some Bestest Karma. One day at a time.
    Just countin' the days til the next visit!

  6. #6

    • Boat shoes all day long
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    Re: I'm going through a hard time right now

    Hang in there, cowboy.
    "Let's get weird" -Abraham Lincoln

  7. #7

    • I see mouse people
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    Re: I'm going through a hard time right now

    Kevin, none of us can say we know what you're going through. But many of us have had a lot of similar things in our lives, so we do understand the stress of your situation and the occasional feelings of hopelessness. There are advocates for the sick and disabled out there, please see if you can get in contact with one so that they can help you find out what you're eligible for and how to obtain it. Try to rest as much as possible and take care of yourself. And if for any reason you need to talk or vent, feel free to PM me.

    Know that we care about you, and want to help you get through this. We are like a big family here!

  8. #8

    • MiceChat Moderator
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    Re: I'm going through a hard time right now

    I have always believed that everything works out. And when it isn't, well, then it's not over yet. Then it will work out.

    Sounds simple, but I'm a simple person. You are on a path where the end is not defined and, frankly, it's hellishly scary. I cannot say I know what you are going through.

    But I can say thank you for talking with us. Your trust shows in the details you supply and we are honored. I know I am.

    You are in my prayers and meditations.

    Tell us, is there more we can do for you? We're always willing to listen.

    Peace. Hang in there.
    Roo
    husband, petowner, wordsmith, imagineer, martialist, playwright, traveller, ardent, wit, critic, barista, Taoist, superhero, fortuneteller, reader, fidget, teacher, dreamer, author, blogger, ghosthunter, voter, patient, bear, gourmand, Floridian, friend

  9. #9

    • Sock Puppet
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    Re: I'm going through a hard time right now

    Kevin- Man, what can one say? I am in a hard place in my life also, and after reading your blog I need to be grateful. I will pray that God gives you the strength to make it thru this. I know for myself that what I am currently going thru is one of those trials. It has forced me to read more scripture, talk to God more, vent my anger to Him, cry tears to Him and smile to Him. I don't know when it will be over or how I will make it, but I do know that I need God every step of the way, every blink of my eyes, every hour of the day. I too, am usually the strong one in my sphere of friends. So its funny for me to "live what I have preached" to others!! So, I am not in a position to say nothing to you except, from one human being to another, hang in there, and thank you for putting my head in the right place. Kevin, you remind us all that everyone, everywhere is special. Pray for the strength from God to not allow anger and resentment to fester in you. I don't know why you are going thru what you are going thru and I won't pretend to act like I do, but I do know that your blog, right now, is reaching people and changing lives!! And that my friend is good!!

  10. #10

    • MC State Comptroller
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    Re: I'm going through a hard time right now

    Thank you all very much for your kind words.

    Things are still at a standstill. I am still arguing with the state of Arizona over my healthcare, but mainly because they keep telling me different things every time i talk with them. It's frustrating, but it is the government, what else should you expect!

    This week I am going down to the Mayo Clinic for some blood work and a CT scan plus meetings with a few other specialists on my team. Then Monday I get go and get fluid drained from my abdominal cavity, so I got that going for me. Who needs Disneyland with that!

    Again, thank you all for your thoughts, prayers and kind words. One thing I have learned through all this is who I can call my true friends and family and you are all on that list. You all have made a difference in my life and my outlook on it and I have always believed that if you can say you did that at least once in your life, then you have led an awesome existence. Thank you all so much for everything. You are all some of the better angels of our nature!

    I will continue to keep you informed of what happens next!
    "Here you leave Today and enter the world of Yesterday, Tomorrow and Bankruptcy!"


    Maybe for once, someone will call me "Sir" without saying, "You're making a scene!"


    Arizona Cardinals 2008 NFC Champions

  11. #11

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    • Skeevy Ray Vaughan
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    Re: I'm going through a hard time right now

    Not sure what you consider a friend but there are many kind, considerate compassionate people on this website. While I am familiar with MediCal, MediCaid works pretty much the same. You should be able to find a counselor to help you and show you what would allow you to qualify for coverage.

    Also BIG TIP! The doctors and hospitals that you are using want to get paid for their services. I would check witht eh hospital they are affiliated with or the medical group, they have people who coordinate government insurance and should be able to help you obtain coverage.

    Feel free to PM me if you have any questions or just post in this thread. I may not be able to solve things but I love pointing people in the right direction that aren't familiar with government programs or other options.

    I'll wish you all the best.

  12. #12

    • MiceChat Round-Up Crew
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    Re: I'm going through a hard time right now

    Wishing you all the best! Sometimes just posting here is a great way to relieve stress, and I'm glad you could find some solace (and hopefully some answers) in here!

    Keep us posted, and I hope things work out!
    It's a Zip-A-Dee-Doo-Dah...Tip for Today!










  13. #13

    • MC State Comptroller
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    Re: I'm going through a hard time right now

    Update:

    Just hot back from the Mayo Clinic where they took 9 vials of blood and did a CT Scan. When i got there i had appointments with a surgery RN, an Endocrinologist and a dietician. Planned to be there all day only to find out that the three appointments had been canceled because my lovely AHCCCS denied my need to see them. Oh and Mayo didn't think to call, write or send a singing telegram to tell me they were canceled. Next week I got an appointment with the head of my "team" and a patient services counselor. I plan to talk to both about what to do next.

    Any suggestions?
    "Here you leave Today and enter the world of Yesterday, Tomorrow and Bankruptcy!"


    Maybe for once, someone will call me "Sir" without saying, "You're making a scene!"


    Arizona Cardinals 2008 NFC Champions

  14. #14

    • Hukuna Matata!
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    Re: I'm going through a hard time right now

    Things will get better, Even through the darkest night, the sun will shine in the day once again. My thoughts are with you, and hope things start going your way once again.

  15. #15

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    • Skeevy Ray Vaughan
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    Re: I'm going through a hard time right now

    Quote Originally Posted by sgtpeper View Post
    Update:

    Just hot back from the Mayo Clinic where they took 9 vials of blood and did a CT Scan. When i got there i had appointments with a surgery RN, an Endocrinologist and a dietician. Planned to be there all day only to find out that the three appointments had been canceled because my lovely AHCCCS denied my need to see them. Oh and Mayo didn't think to call, write or send a singing telegram to tell me they were canceled. Next week I got an appointment with the head of my "team" and a patient services counselor. I plan to talk to both about what to do next.

    Any suggestions?
    The patient services counselor is employed by the hospital and is there to help. They want you as a patient so they want to make sure you are able to obtain coverage. Write down A LOT of questions so you'll be prepared when you get there. Ask about available coverage for disabled, low-income and charitable organizations that are able to help. Dealing with this person should be MUCH easier than going to Social Security or calling 1-800-MEDICARE.

    Be prepared when you are there, that person want to see you covered so they are your ally. If you get angry don't take it out on them.

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