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  1. #1

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    Something you should know about me...

    I have to tell you guys something you should know about me to understand me better personally and here on the boards.

    I have a condition called "Cerebral Palsy" I have it Mild though.

    I was born with this condition and didn't start walking until I was 2 because it was difficult for me because this condition affects my legs and brain.

    I also have a learning diablity, So if you see my spelling a little bit off on the boards. This is when my brain part comes in. So when i ask questions that you might think its dumb, Its not dumb for me. I really want to seek the answer because its hard for me for it process though and understand things.


    If you see me walk with a bit of a limp, its because the condition is mostly affected on the left side of my body. I am still elegable for Red handicap plaquards and front of the line passes! I get extra support in my classes, i have 1 class dedciated to studying, but i'm in a lower math class than the usual.

    Just so you guys know. Also, there is no treatment for this type of handicap, although there is a way to make it a little bit better by having surgery which i had about 6 years ago. It helped me segnificaltly.



    Source: http://en.wikipedia.org/wiki/Cerebral_palsy

    Cerebral palsy (CP) is an umbrella term encompassing a group of non-progressive, non-contagious neurological disorders that cause physical disability in human development, specifically the human movement and posture.

    The incidence in developed countries is approximately 2-2.5 per 1000 live births, and incidence has not declined over the last 60 years despite medical advances (such as electro-fetal monitoring). Cerebral palsy can occur during pregnancy (about 75 percent), during childbirth (about 5 percent) or after birth (about 15 percent). Eighty percent of causes are unknown; for the small number where cause is known this can include infection, malnutrition, and/or significant head trauma in very early childhood. It is a non-progressive disorder, but secondary orthopedic deformities, such as hip dislocation and scoliosis of the spine, are common. There is no known cure for CP. Medical intervention is limited to the treatment and prevention of complications possible from CP's consequences. Overall, cerebral palsy ranks among the most costly congenital conditions in the world to manage effectively.

    Cerebral palsy is divided into four major classifications to describe the different movement impairments. These classifications reflect the area of brain damaged. The four major classifications are:

    Spastic;
    Athetoid;
    Ataxic, and
    Mixed.
    In 30 percent of all cases of cerebral palsy, the spastic form is found along with one of the other types. There are a number of other minor types of cerebral palsy, but these are the most common. Onset of arthritis and osteoporosis can occur much sooner in adults with CP. Further research is needed on adults with CP, as the current literature body is highly focused on the pediatric patient. CP's resultant motor disorder(s) are sometimes, though not always, accompanied by "disturbances of sensation, cognition, communication, perception, and/or behavior, and/or by a seizure disorder” (Rosenbaum et al, 2005).

  2. #2

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    Re: Something you should know about me...

    I'm sorry to hear that. I'm severly asthmatic and qualify for a handicap placard too because when I'm really bad I can hardly walk from the car to the front of the store. it's another reason why my Disneyland trips are few and far between since it's hard for me to walk and breathe and I usually need to rent a wheelchair and around 2 weeks to recover from the bad air. I'm also in complete denial about my asthma and frequently find myself in situations that I could have prevented. I just like to pretend that I'm just like everyone else and that I could run and swim and sing if I want to without having any kind of consequence. I'm glad to hear that you have CP mildly, not that it makes it any easier to deal with but it sounds like you still get around pretty good. And I've never noticed your spelling to be bad. Thanks for sharing.

  3. #3

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    Re: Something you should know about me...

    Quote Originally Posted by Alice's Wonderland View Post
    I'm sorry to hear that. I'm severly asthmatic and qualify for a handicap placard too because when I'm really bad I can hardly walk from the car to the front of the store. it's another reason why my Disneyland trips are few and far between since it's hard for me to walk and breathe and I usually need to rent a wheelchair and around 2 weeks to recover from the bad air. I'm also in complete denial about my asthma and frequently find myself in situations that I could have prevented. I just like to pretend that I'm just like everyone else and that I could run and swim and sing if I want to without having any kind of consequence. I'm glad to hear that you have CP mildly, not that it makes it any easier to deal with but it sounds like you still get around pretty good. And I've never noticed your spelling to be bad. Thanks for sharing.


    I have to at least sit on a bench at Disneyland to get my stanima up. My legs kill me when i'm at disneyland. But that doesnt stop me. I'm not going to give up. I also need my friend's or family's support to hold on to while exiting out of the park because my feet kill me like no other.

    I thought i ddin't give a damn that i had CP until i did a report on it and presented it to the class. I started choaking up in the middle of it feeling bad for myself.

  4. #4

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    Re: Something you should know about me...

    its just my own personal opinion, but i would rely on http://www.webmd.com more than wikipedia for factual medical information. wikipedia i always take with a grain of salt
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  5. #5

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    Re: Something you should know about me...

    Source: WEBMD

    Roughly 500,000 people in the United States have cerebral palsy. It is one of the most common of all congenital (present at birth) disorders: In the United States 15-20 cases are seen in every 10,000 births.


    Children who eventually develop cerebral palsy experience injury to their central nervous system sometime before birth or at birth. This injury causes changes in the structure of the infant's brain. We call the changes "static encephalopathy" (encephalopathy means "brain disease") because they seem to stop right after birth. It is the physical effects caused by the injury, such as muscle spasticity and inability to walk, that family and healthcare workers need to be aware of as the child grows up. There may also be neurological side effects like seizures (epilepsy).


    Cerebral palsy can be caused by something that happens


    Before delivery (the most common time): such as infection, stroke, and metabolic problems such as diabetes and hyperthyroidism.
    During delivery: such as not enough oxygen reaching the fetus.
    Just after birth: such as a stroke or an infection in the baby.

    Some children with cerebral palsy are born early or with obvious signs of infection, but in many cases the cause of brain injury is unknown.


    Symptoms


    Cerebral palsy symptoms include unusually weak or tight muscles, difficulty with balance, poor coordination, abnormal reflexes, and delay in developing motor skills such as sitting and walking. The diagnosis refers exclusively to problems with movement, but the underlying brain injury may cause other neurological problems. About half of children with cerebral palsy will also develop seizures, and about one-quarter will have severe mental retardation. Some of these symptoms may take time to become obvious, especially since cases of cerebral palsy can range from severe to mild and almost unnoticeable.


    The brain injuries that cause cerebral palsy get no worse over time, but the symptoms may develop and change over time. For example, weak muscles often result in what are known as joint contractures -- permanent bending away from the normal position of the joint -- as the child grows. But at the same time, the child's brain continues to develop, and other symptoms may improve.


    "The child's brain and nervous system continue to mature and grow over the first several years of life," according to Dr. David Roye, chief of the Division of Pediatric Orthopedics at Columbia Presbyterian Medical Center in New York City. "It is really gratifying to watch the impressive gains the child with CP can make over time."


    Diagnosis


    Cerebral palsy is sometimes diagnosed at birth, or the diagnosis may not be made until a child is 2 or 3 years old. Physicians use a number of clinical tests to make the diagnosis: No one blood test or X-ray can detect this condition. The physician will test the strength of various muscles, assess the range of motion of different joints, and compare the child's physical and intellectual development with normal childhood milestones.


    Before diagnosing a child with cerebral palsy, the physician may also order lab tests to rule out other causes for the developmental delay (like Tay-Sachs disease or leukodystrophy).


    The awkward configurations of muscles in children with cerebral palsy can cause problems with bones, muscles, and joints. A specialist (often a pediatric orthopedist) will look for problems such as abnormal positioning of the feet, dislocated hips, and scoliosis -- curving of the spine.


    Classifying Cerebral Palsy


    Doctors classify cerebral palsy according to the type of abnormal muscle control the child experiences:


    Spastic. Children with spastic cerebral palsy have increased reflexes, increased muscle tone, tight muscles, and joint contractures.
    Hypotonic. These children have decreased muscle tone, resulting in weakness and joint instability.
    Athetoid. Children with athetoid cerebral palsy squirm and thrash about when they become upset or excited.
    Ataxic. These children generally don't have joint contractures, but they have problems with balance and tremors.

    The condition is also classified by the area of the body affected. Common patterns include:

    Hemiplegia (involvement of the arm and leg on one side).
    Diplegia (involvement of either both legs or both feet).
    Quadriplegia (involvement of all four limbs).

    Treatment Goals


    Doctors today can't repair the brain injury that causes cerebral palsy, but healthcare providers can use a number of tools to help control and improve symptoms.


    Physical therapy to improve strength, range of motion, and joint mobility is the mainstay of treatment. Braces are often used to keep joints in appropriate positions. Medications can also reduce symptoms. Recently, physicians have begun using botulinum toxin (a purified form of a bacterium that causes food poisoning) to relax overactive muscles. Injected into the affected areas, this substance -- marketed as the drug Botox -- can sometimes temporarily restore function. Finally, surgery sometimes can help treat the problems that may develop as the child grows.


    Different patients with cerebral palsy have widely differing symptoms. Treatment strategies must be tailored to the individual. In a study published in Clinics in Developmental Medicine, Dr. Eugene Bleck has shown that communication, daily activities, and general mobility are the highest priorities for these patients.


    "It is important to be as honest and realistic with the patient and his or her family as possible. Once they understand the issues and the options, they are the ones who guide the treatment," explains Roye.


    With input from families and an interdisciplinary team of specialists, children with cerebral palsy can improve tremendously. A cure remains elusive, but early intervention by a well-coordinated team can often make a significant difference in quality of life for affected children.

  6. #6

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    Re: Something you should know about me...

    Thats awesome that your so comfortable with everyone here to let them know about your disability. And no question is a dumb question. Thanks for sharing all the info.
    HEARTS CLUB !!

  7. #7

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    Re: Something you should know about me...

    I also go to Physical Therapy once every other week and to the San Diego Childrens Hospital once a year for a regular basis check up.

  8. #8

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    Re: Something you should know about me...

    Quote Originally Posted by barfownz View Post
    I have to at least sit on a bench at Disneyland to get my stanima up. My legs kill me when i'm at disneyland. But that doesnt stop me. I'm not going to give up. I also need my friend's or family's support to hold on to while exiting out of the park because my feet kill me like no other.

    I thought i ddin't give a damn that i had CP until i did a report on it and presented it to the class. I started choaking up in the middle of it feeling bad for myself.
    It's when people feel sorry for ME that I start to feel sorry for myself

  9. #9

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    Re: Something you should know about me...

    Does that mean i'm allowed to use the :?

  10. #10

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    Re: Something you should know about me...

    Thank you for sharing... Sounds like you let nothing get in the way of doing what you want to do in life. I also have a LD. I am sure you are all ready well aware of this, but when you get into college make sure you register with Disabled Student Services. I could not have gotten through college without DSS. DSS made it possible for me to have a note taker, get time and a half on tests, and support when I occasionally had teachers tell me I was stupid @@. I was able to get through college and go on to get my MS in Education... Right now you also have the right to Note takers, time and half on all tests, including your SATs, and having the teacher work with you to make larger project into more manage assignments. I am with you on the spelling, if I do not use spell check my spelling sucks...lol. Sounds like you have an awesome drive to accomplish your goals in life and wonderful support network of friends and family!!
    Janet
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  11. #11

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    Re: Something you should know about me...

    My friend has the exact same condition like you. Its only mild but it affects his right side,
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  12. #12

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    Re: Something you should know about me...

    Quote Originally Posted by barfownz View Post
    I have to tell you guys something you should know about me to understand me better personally and here on the boards.

    I have a condition called "Cerebral Palsy" I have it Mild though.

    I was born with this condition and didn't start walking until I was 2 because it was difficult for me because this condition affects my legs and brain.

    I also have a learning diablity, So if you see my spelling a little bit off on the boards. This is when my brain part comes in. So when i ask questions that you might think its dumb, Its not dumb for me. I really want to seek the answer because its hard for me for it process though and understand things.


    If you see me walk with a bit of a limp, its because the condition is mostly affected on the left side of my body. I am still elegable for Red handicap plaquards and front of the line passes! I get extra support in my classes, i have 1 class dedciated to studying, but i'm in a lower math class than the usual.

    Just so you guys know. Also, there is no treatment for this type of handicap, although there is a way to make it a little bit better by having surgery which i had about 6 years ago. It helped me segnificaltly.



    Source: http://en.wikipedia.org/wiki/Cerebral_palsy
    Thanks for sharing.


  13. #13

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    Re: Something you should know about me...

    I used to teach special education and my sister is an occupational therapist, so we're very familiar with cerebral palsy. I'm glad you shared your background with us--thank you!

  14. #14

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    Re: Something you should know about me...

    Wow! I would never have known, but then I just met you in person briefly and have only read a few of your posts .

    You just strike me and my husband both as a typical teenage boy and we both love how you always point yourself out in whatever pictures there are of you cuz we think it's sweet and funny!


    Thanks for letting us know more about you...I'm sure that took a lot of courage!

  15. #15

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    Re: Something you should know about me...

    Thanks for sharing this with all of us. You have a lot of courage. I always enjoy your posts. You have been a wonderful addition to MiceChat since I first began reading your posts.

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